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Justina Pelletier

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  • Cerebrum123
    replied
    Originally posted by Catholicity View Post
    Good! She should have never been taken from her parents in the 1st place.

    With what I went through with RSD(and often times just being sick with other stuff), I'm a bit surprised that we didn't have more trouble with this kind of thing. Especially after one doctor claimed to have "cured" me with a full lumbar sypmathectomy*.

    *Worst thing I could have possibly had done. It only made everything worse, and was a lot harder to recover from than I was led to believe.

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  • Catholicity
    replied
    So basically they stuck her in the middle of an experimental idea that stems from a parental diagnosis of munchausen's by proxy. The problem here is that munchausen's by proxy which result's in child abuse is pretty severe and the diagnosis of the parents comes only by psychological evaluation and cases like Justina's simply are unheard of in this. Essentially they were accusing the parents of faking things to get attention when they had NO evidence to do it. Dang Freaky liberal blankety blankety blankety (there aren't enough words that are vulgar enough for me to express how angry I get as a mom myself to think of one of my children being made an experiment in a state game)

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  • DesertBerean
    replied
    Here is what appears to be a good summary of the issues around her case:

    http://www.bostonglobe.com/metro/201...cLI/story.html

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  • Teallaura
    replied

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  • Catholicity
    replied
    Good! She should have never been taken from her parents in the 1st place.

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  • DesertBerean
    replied
    UPDATE: http://www.personhoodusa.com/press-r...ily-wednesday/

    Justina is going home.

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  • JimL
    replied
    Originally posted by DesertBerean View Post
    http://foxct.com/2014/02/28/mass-off...rred-to-tufts/

    So she'll be transferred back to Tufts...and eventually go home. I think somebody is washing hands of this.
    I don't think so. Whether she will be treated at Tufts or not i can't say, but what DCF is saying is that they would like to get her into a facility, away from her parents, but closer to them in Conneticutt where she lives. That being the case, it doesn't really make sense that she would be treated at Tufts for mitochondrial disease. If they believed it was mitochondrial disease and not child medical abuse then she would be going home to her parents, not to a facility. I think that they are just trying to work out a solution that would perhaps make things easier for the whole family, but they are not changing the psychiatric diagnoses or relinquishing custody back to the parents.

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  • DesertBerean
    replied
    http://foxct.com/2014/02/28/mass-off...rred-to-tufts/

    So she'll be transferred back to Tufts...and eventually go home. I think somebody is washing hands of this.

    Leave a comment:


  • Catholicity
    replied
    There is one reality. If a team of Physicians at a teaching hospital decides something, they will go to great lengths to prove it. I have seen this myself. Unfortunately, and this is a reality, when it comes to children, if a parent goes AMA, regardless of what another physician says, and they will utilize their "authority" to attempt to override the parents, including court.

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  • DesertBerean
    replied
    Some myths and facts about mito diseases:

    http://my.clevelandclinic.org/disord..._diseases.aspx

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  • DesertBerean
    replied
    Here's something I found from the Boston Globe. I don't know if this paper is highly regarded but it's interesting reading...Part One at least. Haven't read part two yet...

    http://www.bostonglobe.com/metro/201...xZI/story.html

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  • DesertBerean
    replied
    Hmmmm....JimL, how did you come to observe those interactions?

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  • JimL
    replied
    Originally posted by Outis View Post
    Do you know (from public information, stuff that can be spoken of without violating privacy) if there have been tests to identify or rule out a mitochondrial disease?
    I can't say for certain, though Childrens Hospital in Boston is one of the most respected hospitals in the country. Mitochondrial disease is very difficult to diagnose and sometimes requires many different tests, but I would be willing to bet that Childrens did a very thorough examination the result of which the parents were obviously not happy with, of course. I've seen the relationship between the parents and the child though and there is definitely something wierd psychologically going on there. Justina is 16 years old and acts her age until she meets with her parents wherin she immediately reverts to acting like a 5 year old. And from what i've seen the parents are definitely attention seekers.

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  • Outis
    replied
    Originally posted by JimL View Post
    Justina was previouly admitted to several hospitals and treated for what was believed to be a rare disease with no success and then was admitted to Childrens hospital in Boston where it was determined that she had been misdiagnosed and was re-diagnosed with what is called somatoform disorder, which is psycho-somatic rather than medical in nature and is said to be somehow brought on by attention seeking parents. Childrens Hospital is trying to protect the child from all of the unnecessary medical treatment and surgery's she's been, in their view, unecessarily undergoing. Knowing what i do of the family, i agree with the hospital, but can't say more.
    Do you know (from public information, stuff that can be spoken of without violating privacy) if there have been tests to identify or rule out a mitochondrial disease?

    Leave a comment:


  • JimL
    replied
    Originally posted by DesertBerean View Post
    http://www.boston.com/news/local/mas...C6O/story.html

    I've seen this story come up in the news. I'm puzzled not about the amazingly obtuse justice system but about the apparent reluctance of the hospital to cooperate in treating this child for a supposedly rare treatment. I've seen some suggestions that Obama care is to blame but this all started over a year ago so I don't see how that's relevant.

    Anybody have any insight? Is this really a big cover up by the hospital because they failed to treat the the child properly in the beginning? Or is the disease non existent as some seem to imply?
    Justina was previouly admitted to several hospitals and treated for what was believed to be a rare disease with no success and then was admitted to Childrens hospital in Boston where it was determined that she had been misdiagnosed and was re-diagnosed with what is called somatoform disorder, which is psycho-somatic rather than medical in nature and is said to be somehow brought on by attention seeking parents. Childrens Hospital is trying to protect the child from all of the unnecessary medical treatment and surgery's she's been, in their view, unecessarily undergoing. Knowing what i do of the family, i agree with the hospital, but can't say more.

    Leave a comment:

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